Hello Everyone,
Just wanted to fill you in on our 19 month old. Kara is doing great and growing so much. She is growing her vocabulary with leaps and bounds. Her newest words are "nany" which is her Grandmother, "Papa" Grandfather, "Beth" (which comes out more sounding like Bef) which is her physical therapist. Her other new thing is practicing different forms of greeting such as hi, hello, hey, and hey you. She generally answers every question with a no but once in awhile she will get on a yes spell. That is just a small sampling of the many things she says. Her speech is doing so well.
We have been finding her physical skills feel like they are at a stand still. We were told before that when one thing picks up it is possibly and even likely that others may fall behind. It seems to be now that she is talking the physical is what fell behind. She is very mobile scooting herself all over the place and she won't sit still for very long. Problem is we are ready for her to start walking. So I talked to our therapist about it and we have a plan. For the next 6 to 8 weeks we are going to push hard on standing, pull to stand, and feet placement as she stands. If she just still is not progressing she is going to refer us to Shriners. Shriners will evaluate her physical situation and they design braces for kids that help them learn different things such as how to hold their feet, and keep them from hyperextending her knees. She said she is 95% sure the braces would be temporary and that Kara would learn how to function without them. We aren't sure how long she would have the braces and she would only have to wear them at home when practicing standing and walking. No one can say how long it will take for her to get the hang of it but we are hoping to have her walking by 2. She did and evaluation for Physical Therapy yesterday (I HATE EVALUATIONS) and we have seen some positive progress since her last.
I am so thankful for my sweet and happy baby. Matt and I were saying that we think God gave her an extra dose of sweetness when he held back the physical end. Thankful also for great therapists and the work they do with her.
Hello, I was hoping you might be willing to email back and forth. My unborn daughters was just diagnosed with DWS and I've been having a hard time finding support groups, all I really want is to be able to ask other moms questions and their experiences and compare statistics that have been given etc. We still haven't gone to our fetal MRI so I don't know how severe our daughters DWS is but we are told that it is definitely on the severe spectrum. Please email me if you have the time, thanks you so much. christabrower(at)yahoo(dot)com
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